Prostate Cancer Web Sites
This compilation was assembled as a guide to some available online resources related to prostate cancer, but Us TOO New York cannot vouch for the accuracy of their contents.
• Zero, www.zerocancer.org, formerly the National Prostate Cancer Coalition, is an action group dedicated to ending prostate cancer. Zero has now merged with Us TOO International and the combined organization has added Us TOO's educational and support capabilities to this new bigger group.
• Cancer ABCs runs, in conjunction with Us TOO New York, two face-to-face support groups in New York for men with advanced and metastatic prostate cancer and male breast cancer - see our Us TOO New York home page for info about upcoming meetings at Cornell Weill Medicine. Cancer ABCs also moderates an online/telephone support group for men with advanced and recurrent prostate cancer that is available to men from all over the world, and publishes two prostate cancer blogs, one for general prostate cancer and one specifically for men with advanced disease. It is spearheading a clinical trial for men with advanced prostate cancer along with the Broad Institute of MIT.
• https://www.mskcc.org/videos/managing-pain-meditation is a Memorial Sloan Kettering website with guided meditation videos to help cancer fighters better deal with their stress.
• The at the National Insitutes of Health is a good place for information and statistics about all types of cancer.
• Recently genetic testing is also being looked at as a diagnostic aid. Here's a link for more information: Genetic Testing Link
• Notes for Dr. Richard Rivlin's talk: Diet and Cancer: New Approaches to Ancient Remedies
• Integrative Medicine at Memorial Sloan-Kettering has put together this web site that has up to date findings about herbs, botanicals and other products: http://www.mskcc.org/mskcc/html/11570.cfm
• Malecare is a NYC-based support organization that deals with men's health issues, including prostate cancer. Its web site has health information and news in several languages, as well as a listing of its workshops and support groups: http://malecare.org/nyc/
• New York-Presbyterian's on-line Cancer Prevention magazine is a good way to keep abreast of the latest findings concerning all types of cancer: http://www.nyp.org/cancer/cancerprevention
• National Cancer Institute: http://www.cancer.gov/cancertopics/types/prostate
• National Library of Medicine, part of the National Institutes of health is a good source of up-to-date, reliable medical information: http://www.nlm.nih.gov/medlineplus/
• The National Institutes of Health's ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in humans.
• Medscape site, now owned by WebMD, is comprehensive site for medical info in general; you can create a homepage focusing on urology issues and get a weekly MedPulse newsletter with latest research and news on topics of interest: http://www.medscape.com/homepage
• PubMed, a service of the National Library of Medicine, provides access to over 11 million MEDLINE citations back to the mid-1960's and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources. http://www.pubmed.gov (Note: To get full text of an article, visit the Myra Mahon Patient Resource Center at Weill Cornell, 1305 York Ave., NY, 2nd floor (646-962-5721). https://weillcornell.org/patient-education/myra-mahon-patient-resource-center
• Phoenix 5, a non-profit organization started by a prostate cancer survivor, Robert Vaughn Young, provides extensive coverage with lots of user experiences: http://www.phoenix5.org/menumain.html
• American Cancer Society provides info on cancer in general: http://www.cancer.org/
• Prostate Cancer Research Institute: http://www.prostate-cancer.org/
• Yana, support group that is affiliated with Prostate Cancer Foundation of Australia: http://www.yananow.org
• The CancerLinksUSA.com is a noncommercial site founded to provide support and information to cancer patients and their caregivers. CancerLinksUSA also provides links to various forums and newsgroups to allow patients to interact with other patients to provide support and share experiences and resources: http://www.cancerlinksusa.com
• National Comprehensive Cancer Network: http://www.nccn.org/ is an alliance of 20 leading cancer centers. In 1999, NCCN developed a set of prostate cancer guidelines which are available at the site; it also lists clinical trials.
• Journal of the American Medical Association; full text articles can be purchased: http://jama.ama-assn.org/
• Prostate Cancer Resource Center at http://www.healingwell.com. A good resource for other health issues as well. Includes link to books.
• Prostate Cancer Foundation: http://www.prostatecancerfoundation.org
• The Johns Hopkins Brady Urology Institute has some interesting material: http://urology.jhu.edu/
• Memorial Sloan-Kettering Cancer Center's Prostate Nomogram is designed to help physicians and patients decide which treatment approaches will result in the greatest benefit: http://www.mskcc.org/mskcc/html/10088.cfm
• In the event that prostate cancer surgery is selected the following survival table from Johns Hopkins
is a very instructive one; in addition there are connections to other websites:
http://www.usrf.org/breakingnews/bn_020104_Partin_Tables_Update_2002.html
• This online resource for cancer patients, their families, and caregivers is dedicated to delivering accurate information at a time of need: http://prostatecancerinfolink.net/
• Stress reduction program based at the University of Massachusetts Medical School: http://www.umassmed.edu/cfm/stress/index.aspx
• National Center for Complementary and Alternative Medicine is part of the National Institute of Health and focuses on rigorous study of complementary and alternative medicine: http://nccam.nih.gov/
• New York State Prostate Cancer Coalition is a state-wide prostate cancer educational resource: http://www.newyorkprostate.com
• Canadian Prostate Cancer Network is active in creating and supporting PCa support groups. Their site has lots of useful information and is a good reference to groups in Canada: http://www.cpcn.org/
• www.cancercare.org : web site of Cancer Care, which provides support services, including counseling, to cancer victims, their families and others affected by cancer . Information specific to prostate cancer is under www.cancercare.org/get_help/help_by_diagnosis/diagnosis.php?diagnosis=prostate . Cancer Care's toll-free number is 1-800-813-HOPE.
• www.nydoctorprofile.com : a web site run by the State of New York providing information on doctors practicing in New York, including their medical education, board certifications, disciplinary actions and legal (malpractice) actions.
• http://www.cornellphysicians.com/prc/ The home of the Weill Cornell Myra Mahone Patient Resource Center provides links to important sources of cancer and health information. The librarian can obtain for patients full text articles of material that is in the college's medical library.
• DrugDigest.org provides information about drugs and interactions among drugs and herbals.
• LabTestsOnline.org provides explanations about the lab tests for the consumer.
• ACS publication "Sexuality for the Man with Cancer": http://m.cancer.org/acs/groups/cid/documents/webcontent/002910-pdf.pdf
• Tips for those who are about to have or are recovering from surgery. Written and made available by an UsTOO New York active member: Surgical Tips.pdf
• Qigong exercises and meditation for cancer survivors: https://www.mskcc.org/playlists/qigong-survivors